14 January 2012

Annie Update

For those of you wondering how things went for my little friend who had major surgery on Wednesday, here is the update:
Wednesday, 10:16 am: Annie Update- we got some unexpected news prior to surgery. Annie will need bone from a bone bank :( Also to be prepared that she will probably need a blood transfusion:( she also is having an extra surgery on her right foot. (A tendon transfer) all and all this is been a sucky day but we are staying strong and positive. 

Wednesday, 1:48 pm: Annie is out of surgery. She is in lots of pain. Her heart rate and oxygen levels are not leveling off yet. She just spiked a fever. So keep praying everyone!



Wednesday, 3:28 pm: Annie's oxygen level is getting better, hoping to take her off oxygen in the next hour. Fever is going down slowly. Heart rate is still not perfect but getting better. She has been able to keep water down so far.

Thursday, 2:40 am: Annie is awake and happy, I am so grateful. (I don't even care that it is almost 3am) Just happy she is awake and happy.
First walk - Thursday
Thursday, 7:45 pm: Annie's heart rate is jumping and oxygen level falling . Oh man. Dr is coming in to see her. Looks like a blood transfusion is going to happen unless she drastically changes soon.

Friday, evening: Annie has taken an upper climb. She is down to only 1 IV. She is finely tolerating the oral medication. We might even try to wash her hair tonight. :) hooray! Hoping to be discharged tomorrow.

Two hours ago:  I think this momma is going on about 1 1/2 hours of sleep. Nothing is controlling her pain.



If you are friends with Annie's momma on facebook these posts will look familiar, as I pulled them directly from there. She did message me before they pulled her epidural and her heart was spasming and her levels were all over the place. What a roller coaster. I hope all of the prayers going out to them are being felt midst the pain, frustration, horror, helplessness, exhaustion and glimpses of peace.

As I write this an image popped into my head. I can see this little beauty running like Carrie Ingalls on the intro of Little House on the Prairie through a field of wild flowers, hair blowing behind her, stumbling but getting right back up and carrying on.   Keep praying, singing, hoping, believing and holding on.


We love you Hannig family!

08 January 2012

Sick Monkeys in Perspectives

The yuck hit us Friday night.  It has been going around fast and furious.  We only got a little taste of it - only two pukes and no major poops.  Some of my friends have reported spending 12 hours in the bathroom, sleeping on the floor between bouts.  A few loads of laundry and some ibuprofen later we are feeling much better.

I hate it when my babies are sick.  When I'm sick I can wallow in my aches locked in my bedroom watching episodes of Castle.  But when they are sick I might as well be sick, holding their feverish body in the recliner, trying not to move too much while continuing the rocking so as not to disturb the hair on their body that aches.  It is hard to see them hurt and not be able to take it away.

One of my very good friends from Montessori had a beautiful baby girl a few years ago.  One of the ultra sounds she had pre-birth revealed that her daughter would not come with 10 toes.  Actually without most of one foot.  She entered the world a happy healthy BEAUTIFUL baby with one toe and a heel on one foot.  They knew they would have challenges and were very proactive, getting hooked up with Shriner's and researching extensively to see how to make her developmental challenges easier.  At just a few months old she had her first surgery to amputate her foot just below the knee to make a prosthesis most effective.  It was the first of many surgeries she would have to under go.  The doctors weren't sure if her shin bone would continue to grow too long and have to take more of her leg, possibly above the knee.  And then there was her hip which wasn't being held in the socket correctly.  This beautiful baby was in a body cast for 8 weeks from chest down.  Her mom carried her in a moby wrap that my sister had made for Emmy and pulled her in a wagon as she couldn't bend in the middle.  Her beautiful baby healed and the cast came off and she wore a brace that held her feet and hips in place 18 hours a day and then 12 hours a day.  I made her modified slippers to fit over the braces so she could have something pretty for Christmas.  That was all I could do.  And she grew and changed and got out of her brace and into a new leg.

This beautiful baby wore her new leg, learned how to take it off, crawled and walked even before my typically developing child did.  She played and laughed and met Santa and picked on her big sister and said "no".  And then they went back to the Shriner's hospital for their 47th appointment and learned she would have to go back into surgery.  Her leg was not staying in her hip joint and she need a bone graft and some reconstruction - 8-12 more weeks in a body cast.  Been there - done that: except now she is three.  The family geared up again for what was to come.  Compiling vacation time, ordering hundreds of diapers from diapers.com, picking out a wheelchair, locating that moby wrap again.  She goes into surgery on Wednesday of this week.

Some say - "Your family is so strong, you will be fine.  Our prayers are with you."  And they will and they are but really, that doesn't take away the fear or heart-sickness of watching your child suffer.  The nurse told mom that this surgery will be much much worse than her last.  She will need narcotics to get by for at least two weeks and that won't take away all of the pain.  So not only will her independent baby be trapped in a stinky itchy cast, completely dependent on others for way too long, but she will be in excruciating pain or nauseous from the meds.  You can't possibly prepare for that.

I haven't had to deal with anything even close to this experience but I know how hard it is when my babies have the flu.  I can only imagine that it is that pain times a million.  But her beautiful mama and papa will dry her tears, and sing her songs, and rock her, and wash her hair, and give her medicine, and cry with her and they will get through.  And this sweet baby will walk easier, run faster and jump higher because they suffered now.  And she won't remember the pain and itchy stinky cast.  But she will get better and share her beautiful smile with the world.

Life brings challenges to every family in very different ways.  And they are huge to each of us as we experience them.  But sometimes I need a reminder of how lucky I am.  Am I sharing this story to make you feel guilty about things that you complain about that don't even seem to touch what this family is going through?  No, not at all.  It is just on my mind and I wanted to share.
Take care, sweet Annie.  All of our love and prayers and hopes and wishes and dreams and peaceful sleeps and happy laughs are with you.

01 January 2012

I know a man, his name is Lang...

and he has a neon sign.  And Mr. Lang is very old so they call it "Old Lang's Sign."

I've never made any New Year's resolutions.  Ever.  What's the point?  If I could do what I wished to do I would just do it regardless of what month it was.  But this year I figured it wouldn't hurt to make a list of things I would like to work on with no real expectations.  That way I won't be so disappointed if I don't really accomplish anything but super proud of myself if I do.

Jess' Goals for 2012 (in no particular order):

  •  Market myself - send out letters/brochures/cards to companies in the Fargo/Moorhead and surrounding areas
  •  Start saving for an iPad2 and Q-chord to use in sessions and at home
  •  Get off the recliner and turn off the TV
  •  Play with my kids and husband more
  •  Knit something for everyone I love
  •  Make a monthly supper menu and make it happen in real life
  •  Play the piano
  •  Uncover my sewing machine and use it
  •  Drink less pop and more water
  •  Acknowledge that I am good at what I do
  •  Be happy with who I am and what I have - stop comparing myself to others


I had them numbered first but changed them to bullets because I thought it was kinda sad that the first thing on my list was about work and the last about self-appreciation.


As the monkeys run amok around me I am sure of one thing:  parts of this year will be filled with energy, experience, tears, work, 
sass, learning, anger, empathy, 

observation, dancing, relating, laughter, telling, singing, repetition, frustration, joy, excitement, creating, gaming, 
whining, humor, forgiveness and a whole lot of love.  And that is just the way I like it.